The FAP Gene Support Group

(Familial Adenomatous Polyposis)

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Informal Chat and Activity Day

Saturday October 25th 2008 Swarkestone Sailing Club

A bit of feed back from John.

We held our first FAP chat day yesterday where nine of us representing three families enjoyed a day of chat and activities on the lake. So it was not a raging success number wise, but we managed to get lot of chat about how FAP affected us. It is much better than phone calls. As well there are times when Mick and I do need to get together and it was nice to have others there as well. So we will be doing it again next year although the timing may be different and we are looking at another venue.

We will be using Swarkestone Sailing Club again next March, Saturday 28th for our annual FAP Information and Family Day. This will be the regular formal day with two local speakers in the morning and in the afternoon Kay Neale from St. Mark's Hospital FAP Registry and also somebody from the "Facilitating Networks" Project.