November 21st 2018
January 15th 2019 As a lasting tribute to John Roberts (1941-2018) our Verona Article on 'The Role of a Patient Association' is now available as a PDF file Download Here
November 21st 2018 We are saddened to hear that John Roberts our Chaiman for many years recently passed away
There is a new link to a free download of the booklet Mick's Genetic Journey.
Page - The FAP Gene Support Group now has over 500 members
9th 2018 Our founder Mick Mason received a "Champion of Hope
the Genetic Disorders UK Awards Dinner at The Amba Hotel in London.
Attended by 180 guests of various charities and organisations this
was for his lifetime dedication to The UK Genetic Disorder Community.
His thanks go to all members who over 15 years have helped make
the group such a success.
January 2018 Update on Peter's Personal Curcumin Trial opens in new window
Test Interviews for Manchester/North West England opens
in new window
of 6 Videos on Genetic Testing for Various Bowel Cancer Genes
Bowel Cancer UK Link
to their Website Videos opens in new window
have Peters annual update on his personal Trial with Curcumin
2016 New Survey Family Web Study
2016 Newsletter Download
FAP Gene Support Group Facebook Group
June 21st 2016 Walking The Yorkshire 3 Peak Challenge
19th our 2015 8th Annual Chat Day Photographs Our
28 New Leaflets Available E
Mail with Address
14th 2015 New FAP Support Group Leaflet
to view in PDF
22nd 2015 Podcast raising awarness of FAp in Hawaii
14th 2015 Plymouth Musketeers Running Club Fundraiser
9th 2015 Details of USA Desmoid Tumour Trial
4th 2015 Australian Facebook link repaired
17th 2015 New trial for Patients with FAP
13th 2015 New E mails from Daniel in Hawaii
October 2014 Helen gave a very relaxed talk at The Chat Day
about her Bowel Transplant.
21st 2014 Our best wishes to Helen who has had her bowel transplant
surgery in Oxford UK and after 5 weeks is now recovering at