The FAP Gene Support Group

(Familial Adenomatous Polyposis)

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The FAP Gene Support Group

USA and Canada Links

Hereditary Colon Cancer Takes Guts Link to website

The Hereditary Colon Cancer Foundation is a registered 501(c)(3) nonprofit organization serving the hereditary colon cancer community by connecting patients, caregivers, and medical professionals to educational, social, and financial resources while promoting requisite research and health care initiatives. We are building this community holistically by acting as a conduit to physical and psychological care from a variety of traditional and modern health care practices.

American Childhood Cancer Organization Link to website

Our mission is to provide information and support for children and adolescents with cancer and their families, to provide grassroots leadership through advocacy and awareness, and to support research leading to a cure for all children diagnosed with this life-threatening disease.

The Familial Adenomatous Polyposis Foundation Link to website

The Familial Adenomatous Polyposis Foundation is a nonprofit organization serving the hereditary colorectal cancer community. Our vision is to be a beacon of light - extending life expectancy, enhancing life quality, and instilling hope in those diagnosed with adenomatous polyposis, hamartomatous polyposis, or non-polyposis syndromes including: Familial Adenomatous Polyposis (FAP), Gardner Syndrome, Turcot Syndrome, Attenuated Familial Adenomatous Polyposis (AFAP), MYH-Associated Polyposis Syndrome (MAP), Juvenile Polyposis Syndrome (JPS), Cowden's Syndrome, Bannayan-Riley-Ruvalcaba Syndrome (BRRS), Proteus Syndrome, Hereditary Non-Polyposis Colorectal Cancer (HNPCC), and Lynch Syndrome.

The FAP International Information Foundation Link to website

It is with great sadness that we were informed Brenda Bostic the founder of FAPINFO passed away on March 6th 2014. Our thoughts are with all her family and friends

As founder of The FAP International Information Foundation IF, I wanted to create a place where anyone could access information on the heredity disease of Familial Adenomatous Polyposis, contact others with FAP and be kept up-to-date on research and treatment of FAP. Brenda Bostic

The MD Anderson Cancer Center Dept. of Genetics Link to website

The Department of Genetics is a basic science department located in the George and Cynthia Mitchell Basic Sciences Research Building at the world-renowned University of Texas MD Anderson Cancer Center, in the heart of the Texas Medical Center.

The Cleveland Clinic Ohio Link to Website

Looking for reliable information on specific diseases and conditions? Cleveland Clinic offers many free guides and newsletters covering a broad range of health information.

The National Institute of Health Link to website

Originally described in the 1800s and 1900s by their clinical findings, the colon cancer susceptibility syndrome names often reflected the physician or patient/family associated with the syndrome (e.g., Gardner syndrome, Turcot syndrome, Muir-Torre syndrome, Lynch I and II syndromes, Peutz-Jeghers syndrome, Bannayan-Riley-Ruvalcaba syndrome, and Cowden syndrome).

The Johns Hopkins Division of Gastroenterology and Hepatology Baltimore USA - Kids and Teens FAP Information Link to website

This section is dedicated to kids and teenagers who have a genetic condition called FAP. FAP, or its full name, familial adenomatous polyposis, is a condition in which polyps (pronounced pol'ips) form in the digestive tract and are inherited. Polyps are abnormal, mushroom-like growths that form on the inside of the digestive tract. The Hereditary Colorectal Cancer Website has been sponsored by the Robert Rauschenberg Foundation

FAP for Kids Booklet Link to website Scroll Sown For Booklet

 

Published in the U.S.A. for The National Society of Genetic Counselors. This child-friendly guide reinforces the information about Familial Adenomatous Polyposis (FAP) that families, doctors, and genetic counselors provide for children at risk. Booklet includes basic information, presented in a fun way that is easy to read and understand. Also included are issues of privacy, resources for parents, a glossary of terms and great illustrations! ©2004

FAP and You - Mount Sinai Hospital Link to website

The Zane Cohen Centre researches about Gastrointestinal Cancers at Mount Sinai Hospital. The Familial Gastrointestinal Cancer Registry (FGICR) provides information for FAP and the polyposis syndromes to affected families across Canada and for HNPCC to Ontario families.

The Huntsman Cancer Institute Familial Colon Cancer Registry

Link to website

The Familial Colon Cancer Registry at The Huntsman Cancer Institute, University of Utah, studies individuals from families at increased risk of developing colon cancer and those who have or are at-risk of developing a known hereditary polyp syndrome, including familial adenomatous polyposis [FAP].

John found this website while looking for newsletters concerning FAP. On their website there is a link to the newsletters on the left hand side. In the newsletters The Familial Colon Cancer Registry is the second one down.

We would like to thank the Institute for allowing us to include this link.