The
FAP Gene Support Group
Australian
and New Zealand Links
Australian
Facebook Page Facebook
Link
A
member in Austrlia has started a facebook page about FAP
---
National
Cancer Genetics Education Group
Link
to Website
The
National Cancer Genetics Education Group (NCGEG), formed
in February 2000, brings together individuals involved in
cancer genetics education from various organisations in
Australia.
The
Primary Goals of the NCGEG are to:
Develop and promote evidence-based, up-to-date educational
resources related to familial cancer and cancer genetics.
Provide
a national network for the collaborative development of
cancer genetics educational resources in Australia.
Ensure
a consistent approach to cancer genetics education is maintained
across Australia, in line with National Health and Medical
Research Council guidelines.
Provide
educational input to key cancer genetics committees and
reports.
---
The
Centre for Genetics Education (CGE) Link
to website
The CGE based at Royal North Shore Hospital
in Sydney, was established in 1989 as the education arm
of the NSW Genetics service of NSW Health. From 1989 -2000
it was known as the NSW Genetics Education Program.
The team at the CGE is dedicated to providing
current and relevant genetics information to individuals
and family members affected by genetic conditions and the
professionals who work with them. The Centre's educational
activities which include resource production, workshops
and training programs all aim to bring genetics information
to the widest audience possible with an aim of assisting
in addressing the impact of the new and developing genetics
technologies. Our research programs aim to provide an evidence
base for these activities.
---
The
Familial Cancer Registry Link
to FCR PDF File
The
Registry is a service for individuals and families at increased
risk of developing cancer.
The
Registry provides the following services:
Up-to-date
information on surveillance and inherited cancer.
Registry staff will liaise with clinicians to monitor the
outcome of surveillance.
If requested, a reminder service for when surveillance appointments
are due.
A regular newsletter which includes updates on research
and information about inherited cancer.
