Links to
Genetic Information
Click on
Links for Websites
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| Genetic
Disorders UK |
| Genetic
Disorders UK is a registered charity with a vision to improve
the lives of individuals and families affected by genetic disorders.
While
individual genetic disorders are rare, it is thought that
there are currently more than 6,000 diagnosed disorders and
new disorders are being identified every day. It is estimated
that 1 in 25 children is affected by a genetic disorder. This
means that in the UK, 30,000 babies and children are newly
diagnosed each year and more than half a million children
and adults are living with a genetic disorder. geneticdisordersuk.org
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New
2013 - West Middlesex University Hospital London
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The Family History of Bowel Cancer Clinic
West
Middlesex Hospital
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Euro
Genetic Guide
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The EuroGenGuide
contains information about genetic testing, counselling and
research across Europe. The information is intended as a resource
for both patients and their families, and health professionals
alike.
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Jeans
for Genes
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Jeans
for Genes It's fun, it's simple, it's
a great cause! Jeans for Genes is a national appeal where everyone
across the UK is asked to throw out the usual dress rules, jump
into their jeans and donate £1 schools / £2 companies
to help children with genetic disorders. |
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The
National Genetics Education Centre
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The
National Genetics Education and Development Centre I
have been given details of this new website which looks interesting.
Also they are looking for people who would like to tell their
story in order to help train nurses about genetics and genetic
conditions. |
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The
Polyposis Registry
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Polyposis
Registry One of the first websites
I came across based at St. Mark's Hospital
in London. After reading through the site a few times I actually
found for the first time that things were beginning to sink
in. |
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The
Johns Hopkins Hospital New York
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| The
Johns Hopkins Hospital in New York If
you would like to see a booklet for those with FAP and make
allowances for the differences in provision of medical services
in the USA to the UK this is worth a look. I actually gave a
copy to my genetic centre who were quite interested. |
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The
Clincal Genetics Society
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The
Clinical Genetics Society This is one of The BSHG constituent
organisations which provides a
diagnostic service and "genetic counselling" for individuals
or families with, or at risk of, conditions which may have a
genetic basis. Genetic disorders can affect any body system
and any age group. The aim of genetic services is to help those
affected by, or at risk of, a genetic disorder to live and reproduce
as normally as possible |
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GeneWatch
UK
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GeneWatch
UK Is a not-for-profit group that monitors developments
in genetic technologies from a public interest, environmental
protection and animal welfare perspective. GeneWatch
believes people should have a voice in whether or how these
technologies are used and campaigns for safeguards for people,
animals and the environment. They work on all aspects of genetic
technologies - from GM crops and foods to genetic testing of
humans. |
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Genetic
Alliance UK
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Genetic Alliance UK is a national alliance of patient
organisations with a membership of over
130 charities which support children, families and individuals
affected by genetic disorders. |
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NowGen
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Nowgen
Is one of
six Genetics Knowledge Parks (GKPs)
funded by the Departments of Health and Trade & Industry
that have been established across the UK to ensure that the
outcomes of human genetics research are successfully applied.
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Macmillan
Cancer Support
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Macmillan
Cancer Support A new booklet 'Understanding Cancer
Genetics' is free of charge for cancer patients and their relatives. |
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Discovery
Health
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| Discovery
Health An unusual place to find FAP information on
this Satellite TV station. |
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Various
articles on Embryo Testing
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The
NewScientist.com
BBC
News
BBC
News 2nd Article
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