The
FAP Gene Support Group are pleased to announce that
they have been invited by Tillotts Pharma to support
its survey of Patients with 'FAP' (Familial Adenomatous
Polyposis)
Tillotts Pharma would like to broaden its knowledge
about FAP. They are interested to find out more about
the burden and needs of patients in daily life. The
purpose of this Questionnaire is to increase their knowledge
FAP and to better understand the patients perspective.
If you are a FAP patient and are interested
in participating in this survey, please
review the Terms and Conditions below. If you
are in agreement and wish to continue, the link to the
survey is also found below.
The
format is a web-based survey on the platform SmartSurvey
Terms
and Conditions
This Questionnaire was commissioned by Tillotts Pharma
AG ("Tillotts" or "we"). The purpose
of this Questionnaire is to increase our knowledge of
familial adenomatous polyposis ("FAP") and
to better understand the patient's perspective. By proceeding
with this Questionnaire you grant us the unrestricted
right to use your Questionnaire responses for this purpose.
You have been invited to participate in this Questionnaire
through your Patient Organisation. Tillotts Pharma AG
has not and will not receive any of your identifying
information. Your participation in this Questionnaire
is voluntary. You are free to choose not to participate.
The online Questionnaire will take approximately 10
minutes. Your responses will be treated confidentially
and we do not collect identifying information such as
your name, email address or IP address. The answers
to the Questionnaire do not need and should not contain
information that will personally identify you - please
do not include your name or any other identifying information
in any of your responses. If you have any questions
about the Questionnaire, please contact your Patient
Organisation. By proceeding with this Questionnaire,
you agree to the privacy policy and terms of use of
SmartSurvey, the survey hosting platform.
The
FAP Gene Support Group will receive a donation from
Tillotts Pharma to cover their expenses.
|