The FAP Gene Support Group

(Familial Adenomatous Polyposis)

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The FAP Gene Support Group

Australian and New Zealand Links

Australian Facebook Page Facebook Link

A member in Austrlia has started a facebook page about FAP

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National Cancer Genetics Education Group Link to Website

The National Cancer Genetics Education Group (NCGEG), formed in February 2000, brings together individuals involved in cancer genetics education from various organisations in Australia.

The Primary Goals of the NCGEG are to:

Develop and promote evidence-based, up-to-date educational resources related to familial cancer and cancer genetics.

Provide a national network for the collaborative development of cancer genetics educational resources in Australia.

Ensure a consistent approach to cancer genetics education is maintained across Australia, in line with National Health and Medical Research Council guidelines.

Provide educational input to key cancer genetics committees and reports.

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The Centre for Genetics Education (CGE) Link to website

The CGE based at Royal North Shore Hospital in Sydney, was established in 1989 as the education arm of the NSW Genetics service of NSW Health. From 1989 -2000 it was known as the NSW Genetics Education Program.

The team at the CGE is dedicated to providing current and relevant genetics information to individuals and family members affected by genetic conditions and the professionals who work with them. The Centre's educational activities which include resource production, workshops and training programs all aim to bring genetics information to the widest audience possible with an aim of assisting in addressing the impact of the new and developing genetics technologies. Our research programs aim to provide an evidence base for these activities.

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The Familial Cancer Registry Link to FCR PDF File

The Registry is a service for individuals and families at increased risk of developing cancer.

The Registry provides the following services:

Up-to-date information on surveillance and inherited cancer.

Registry staff will liaise with clinicians to monitor the outcome of surveillance.

If requested, a reminder service for when surveillance appointments are due.

A regular newsletter which includes updates on research and information about inherited cancer.