The FAP Gene Support Group

(Familial Adenomatous Polyposis)

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Genetic Disorders UK
Genetic Disorders UK is a registered charity with a vision to improve the lives of individuals and families affected by genetic disorders.

While individual genetic disorders are rare, it is thought that there are currently more than 6,000 diagnosed disorders and new disorders are being identified every day. It is estimated that 1 in 25 children is affected by a genetic disorder. This means that in the UK, 30,000 babies and children are newly diagnosed each year and more than half a million children and adults are living with a genetic disorder.

New 2013 - West Middlesex University Hospital London

The Family History of Bowel Cancer Clinic West Middlesex Hospital

Euro Genetic Guide

The EuroGenGuide contains information about genetic testing, counselling and research across Europe. The information is intended as a resource for both patients and their families, and health professionals alike.

Jeans for Genes
Jeans for Genes It's fun, it's simple, it's a great cause! Jeans for Genes is a national appeal where everyone across the UK is asked to throw out the usual dress rules, jump into their jeans and donate £1 schools / £2 companies to help children with genetic disorders.
The National Genetics Education Centre
The National Genetics Education and Development Centre I have been given details of this new website which looks interesting. Also they are looking for people who would like to tell their story in order to help train nurses about genetics and genetic conditions.
The Polyposis Registry
Polyposis Registry One of the first websites I came across based at St. Mark's Hospital in London. After reading through the site a few times I actually found for the first time that things were beginning to sink in.
The Johns Hopkins Hospital New York
The Johns Hopkins Hospital in New York If you would like to see a booklet for those with FAP and make allowances for the differences in provision of medical services in the USA to the UK this is worth a look. I actually gave a copy to my genetic centre who were quite interested.
The Clincal Genetics Society
The Clinical Genetics Society This is one of The BSHG constituent organisations which provides a diagnostic service and "genetic counselling" for individuals or families with, or at risk of, conditions which may have a genetic basis. Genetic disorders can affect any body system and any age group. The aim of genetic services is to help those affected by, or at risk of, a genetic disorder to live and reproduce as normally as possible
GeneWatch UK
GeneWatch UK Is a not-for-profit group that monitors developments in genetic technologies from a public interest, environmental protection and animal welfare perspective. GeneWatch believes people should have a voice in whether or how these technologies are used and campaigns for safeguards for people, animals and the environment. They work on all aspects of genetic technologies - from GM crops and foods to genetic testing of humans.
Genetic Alliance UK
Genetic Alliance UK  is a national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders.
Nowgen Is one of six Genetics Knowledge Parks (GKPs) funded by the Departments of Health and Trade & Industry that have been established across the UK to ensure that the outcomes of human genetics research are successfully applied.

Macmillan Cancer Support
Macmillan Cancer Support A new booklet 'Understanding Cancer Genetics' is free of charge for cancer patients and their relatives.
Discovery Health
Discovery Health An unusual place to find FAP information on this Satellite TV station.

Various articles on Embryo Testing


BBC News

BBC News 2nd Article