Trials
and Research
It is most strongly advised that you discuss
with your GP/Consultant before taking any of the products
mentioned. Also that you continue with any surveillance.
I expect most of us hope that there are trials
being held or planned with treatment of our own particular
disease or illness. However with FAP and the other Bowel Genes
it is not just one part of the body or one condition that
affects us. We are now ready to report on two different trials
which concern polyps in the colon and rectum.
The two trials mentioned concern Curcumin
C3 complex and Alfa Capsules, The Omega-3 Polyunsaturated
Fatty Acid Eicosapentaenoic acid (EPA) or EPA FFA.
John has been in contact with a patient who
has been running a personal trial on Curcumin C3 Complex for
two years. This trial has been run with support from the NHS
and involved support from several academics. Not an easy thing
to do but sometimes necessary if a patient feels so strongly
about it.
FAP Gene has followed trials on Alfa Capsules
since the company SLA Pharma gave a presentation at our first
Family/Information Day in 2006. Although only a handful were
present it did make us aware that researchers were looking
into at least two of our problems, polyps in the colon and
rectum.
So John has started out on the Curcumin C3
Complex Route and I have taken the Alfa Capsule Route plus
a 75mg Aspirin which I have taken for several years. Perhaps
we could write a song about that.
Hopes are for a reduction in John's Rectal
Polyps and for myself those in my duodenum and small bowel.
Hopefully we will have comparisons to make over the coming
years.
Mick Mason
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