This was the first event organized
by John Nickels. 25 people enjoyed yet another highly
successful day including our first visitors from Scotland.
Unfortunately the day started with the news that John
Roberts had stood down as Chairman after 10 years due
to personal reasons. I am sure that everyone sends their
best wishes to John and his wife. Our thanks go to John
who was responsible for organizing all our events starting
with the 2006 Family/Information Day at The Swarkestone
Sailing Club in Derbyshire. He will surely be missed.
John Nickels welcomed everyone and
then left it to evolve into a very relaxed and enjoyable
atmosphere. The blend of Health Professionals, Patients,
Relatives and friends has been a tried and trusted over
the years but this seemed one of the best yet. Perhaps
a reason for John already booking Branston for next
year's event on Saturday the 19th of September.
A short AGM reported healthy funds
with thanks being given to Vicky and Mark after Mark's
Three Peaks Challenge and also Louisa and Russ after
the Sky Diving taken on by Russ. These two events have
ensured the continuation of FAP Gene for several years
to come at least.
For the moment photos are available
on the link at the top of the page but will be added
soon to the website. The star undoubtedly was Helen
who came in at lunchtime only 2 months after a successful
There was some general talk about whether
Genetic Centre's should offer further check-ups for
those with FAP after initial surgery. Some do and some
don't. It is fortunate that although there are several
heightened risks of other complications many patients
will never experience any problems. For those deemed
at risk the question is also whether they would want
any further checks. Added to this came the question
of whether checks which could be outside of the patients
own NHS Trust would be funded.
After a sumptuous hot buffet, including
a rather delicious Millionaires Shortcake, Muditha Samarasinghe
from the Polyposis Registry at St Mark's Hospital in
Harrow gave a talk on FAP. Muditha has been to several
of events and it is hoped this will continue despite
her moving on from The Registry.
Then Helen gave us the most fascinating
talk any of us will have probably have heard about her
recent bowel transplant. It was unbelievable that only
two months before she had her surgery. Only the 28th
in the UK and the 4th with FAP she now enjoys making
up for lost time with home cooking and meals at various
venues. Most recent after The Chat Day was driving alone
to Oxford to see her consultant where she had the news
that another 3 months can pass before another drive
down there. I am sure we will hear more from Helen in
the future and a fundraising event is being planned
in her village in February.
As is usual at the end of the
day people are still chatting, seeking help and advice
from those present and saying their farewells. If you
were there and would like to pass on any comments they
will be added to this report.