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Personal
Stories
Use the links
on the left to view or download articles in PDF Format where permitted
for reading PDF Files
My thanks go to those who have either written
or given their permission to include these articles. I am sure that
they will help you understand how people cope with different aspects
of the gene.
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Dan
I am
a 34 year old male with FAP and started my Nlog to help others wuth
FAP
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Daniel
Shockley
Daniel
has Attenuated FAP and is keen to raise awareness and help others
from Hawaii
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Bonnie
Bonnie
came to Swarkestone 2008 with her mum and made such an impression
with her vitallity despite being seriously ill.
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Chris
Stewart
An
article from The ilesostomy and Internal Pouch Support Group Journal
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| Chris
tells how FAP has helped to save her life and reunite her with her
daughter who she gave up for adoption 38 years ago. |
Sue
Brooke
An
article from The ilesostomy and Internal Pouch Support Group Journal
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Chris's
daughter Sue tells her story of how she was reunited with her mum.
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John
Roberts Derby Evening Telegraph March 14th 2007
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John Roberts considers himself fortunate to have survived a rare
genetic condition which claimed the lives of both his mother and
his son. Doctors then discovered that he had familial adenomatous
polyposis. Natalie Murphy of The Derby
Evening Telegraph writes an excellent article on John and his
Family which also promotes our Family/Information Day 2007 at Swarkestone
Sailing Club
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Ann
and Derek
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| When we first got married in 1971 everything
was fine. We had no idea that there was an inherited disease in our
family. We had two children and they were quite young (2 or 3 years
old) when we got a letter from St Marks hospital to ask if Derek would
go to be screened for polyps in his large bowel. Download
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Helen
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| Helen Padgett's father, Terry, died
of bowel cancer when she was seven years old and doctors found the
Melton care assistant had inherited a gene which made her prone to
the disease. Download |
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Jo
Faulkner
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| It was the moment Jo Faulkner had always
dreaded. 'I'm going to have my bowel removed just like you,' said
her son, Kelcey. Shakily, he reached out to put his hand on his sister
Lyndy's arm - 'And so is she.' Download |
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John
Roberts
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| Like most things in my life, finding
out that I had FAP was not straightforward. There were several hints,
via my mother and brother, but it was not until my son became ill
with a statistically linked illness and I had a second bowel check
that it was confirmed. Download |
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Paul
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It was early January 2003, when I received the news that I had
been diagnosed with FAP and that I would need surgery. After consultations
with a surgeon and a genetic consultant, we agreed that a Total
Colectomy with Ileorectal Anastamosis (IRA) would be the preferred
procedure for me.
Download
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If you would like to pass any comments or indeed
offer your own story I will only be too pleased to receive them.
Special thanks go to The
Leicester Mercury and The
Melton Times Newspapers and The Ileostomy and Internal Pouch
Support Group (The ia) for the reproduction of their articles.
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