The FAP Gene Support Group

(Familial Adenomatous Polyposis)

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FAP and Me:

A Kid's Guide to Familial Adenomatous Polyposis

Link to Purchase Book Then scroll down page

We are always on the lookout for information about FAP and the result this time is what we consider an excellent book for children. Below is the introduction.

WOULD YOU LIKE TO LEARN MORE ABOUT FAP?

Yes? Then meet Dr. Helix.


Dr Helix and the Kids
Dr Helix and The Kids


Dr. Helix knows more about FAP than just about any other
dog on the planet. He also knows a lot about the digestive system. Dr. Helix and his friends Danny, Nicole and Alexis have a club called the DNA Club. The DNA Club helps kids learn about FAP. You see, Danny, Nicole and Alexis all have FAP. You can join the DNA Club on a learning adventure by reading this booklet. The booklet is for people who have FAP or who may have FAP because it is in their family. You may want to read it with your parents or another adult. This booklet has a lot of information about FAP. It explains big words and answers questions that kids often ask when they first learn about FAP. New words are in bold and are listed at the end of booklet. Dr. Helix and the DNA Club have included some fun activities in the booklet, so get your pencil ready

Published in the U.S.A. The National Society of Genetic Counselors acknowledges the following members for developing and writing the publication and their affiliated institutions for contributions in kind.

Sumedha Ghate, MS1, Anna Leininger, MS2, Cindy Hoyle Solomon, MS3, Nicole Teed, MS4, and Jill Brensinger Trimbath, MS5

Design & Illustrations by Jeffry Byrd
1 St. Vincent Hospital, Green Bay, WI
2 Minnesota Colorectal Cancer Initiative, St. Paul, MN
3 Myriad Genetic Laboratories, Inc., Salt Lake City, UT
4 Children's Hospital of Michigan, Detroit, MI
5 The Johns Hopkins Hospital, Baltimore MD

All Text and Graphics ©2004 National Society of Genetic Counselors, www.nsgc.org