|Dear FAP Group Members,
I am a graduate student in genetic
counseling at the University of South Carolina
School of Medicine and am conducting research
on Familial Adenomatous Polyposis (FAP). The primary
purpose of this study is to understand parental
concerns and preferences towards screening for
hepatoblastoma in children at risk for FAP. Hepatoblastoma
is a rare liver tumor that is associated with
a less than a 2% risk in children with FAP.
You may qualify if you or your
childs other parent has been diagnosed with
FAP. If you are interested in participating, please
complete a short survey to determine if you meet
the criteria for this study at:
When prompted, please enter the password: FAPc
Participation is completely
confidential. Risks of this study include potential
anxiety provoked by awareness of health consequences
and possible loss of privacy confidentiality.
Maximum precautions will be taken to ensure the
safety of your personal contact information as
well the anonymity of your survey responses. Your
participation in this research is completely voluntary.
If you do not wish to participate, simply disregard
this message. If you have any questions, you may
contact me or my faculty advisor at any time.