The FAP Gene Support Group

(Familial Adenomatous Polyposis)

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19th June 2015

Recently I was interviewed by Lee Silverstein / The Colon Cancer podcast. You can listen to my interview at the following link: http://thecoloncancerpodcast.com/014/

17th March 2015

Mick,
Hope all is well. Here is the latest on my advocacy efforts. As you know the American Cancer Society has been tracking my experience. I was interviewed today by Jill Courtney / American Cancer Society, Senior Specialist, Division Media Advocacy, Houston, Tx. Jill arrived in town last night and would like me to be the ACS spokesperson Thursday, 19 March at our State Capital. This is in direct support of "A Day At The Capital" for CRC awareness. I will be at the Capital all day to share my story, the importance of CRC awareness and early detection.

What an honor!

Updates will be provided as they become available.
Regards,

Daniel

2nd March 2015

On behalf of the Fight Colorectal Cancer and Colon Cancer Alliance I was asked to represent Hawaii and request the City of Honolulu Mayor Kirk Caldwell to support this lifesaving campaign in Honolulu.

Also, the Hawaii Governor will be presenting me w/the March 2015 National Colorectal Cancer Awareness proclamation on Friday, March 13, 2015. I will be sure to pass along some photos.

26th February 2015

On behalf of the Fight Colorectal Cancer and Colon Cancer Alliance organizations I was asked to represent Hawaii and request Honolulu Mayor Kirk Caldwell to sign a proclamation in support of the campaign.
The attached photos of today's ceremony at the City of Honolulu Managing Director's conference room provided for you viewing pleasure.
This is the first ceremony of its kind in Hawaii.

Next stop: The Governor of Hawaii's ceremony which is set for the following time frame:
Date: Friday, 13 March, 2015
Location: State Capital Ceremonial Room
Updates will be provided as they become available.
Widest dissemination is encouraged and authorized of this email.

23rd February 2015

The March 2015 - National Colorectal Cancer Awareness campaign starts March 1, 2015. On behalf of the Fight CRC and Colon Cancer Alliance I have been asked to represent Hawaii and request our Governor and Honolulu Mayor to issue proclamations for this lifesaving campaign. The first ceremony is Wednesday, 25 February, 2015 w/the Honolulu Mayor. The Governor's ceremony is set for Friday, 13 March, 2015. I be sure to forward a write up and photos.

20th February 2015

I wanted to keep you appraised of my happenings. Honolulu Mayor Kirk Caldwell has issued a proclamation in support of March 2015 - National Colorectal Cancer Awareness month. The ceremony is scheduled as follows:

Date: Wednesday, 25 February, 2015
Time: 1100
Location: Mayor's conference room

Governor David Ige's proclamation will be issued. The tentative time frame for the ceremony is as follows:

Date: Friday, 13 March, 2015
Time: 1030
Location: State Capital Ceremonial Room

Updates will be provided as they become available.


29th August 2014

The attached March - National Colorectal Cancer Awareness proclamations from Hawaii Governor and Honolulu Mayor. I also included letters from Senator Brian Schatz and Congresswoman Collen Hanabusa.

PDF Format Links

Hawaii Governor Honolulu Mayor

Senator Brian Schatz Congresswoman Collen Hanabussa

29th August 2014

My local Hawaii employer, City Mill, conducted a company wide campaign in support of National Colorectal Cancer Awareness month. City Mill Flyer in PDF Format

10th September 2014

Hawaii just made United Ostomy Associations of America (UOAA) history! I have just been advised by the secretaries of the Governor and Honolulu Mayor they will both recognize Ostomy Awareness Day! The request was made 12PM Hawaii time, Tuesday, 9 September and was approved by 3PM Hawaii time the same day! According to the UOAA, Hawaii is the first state this year to have confirmation a proclamation will be provided by a Governor and a Mayor. Ostomy Awareness Day is Saturday, 4 October, 2014.

I will be requesting the presentation of the proclamations to take place at the State Capital Ceremonial Room duriong the last week of September. Also, I have requested Hawaii Senator Brian Schatz and Congresswoman Colleen Hanabusa to support this campaign. I am currenlty pending their acceptance.

19th September 2014

On behalf of the United Ostomy Associations of America (UOAA) I submitted a request to the Hawaii Governor and Honolulu Mayor to proclaim Ostomy Awareness Day in Hawaii for Saturday, 4 October, 2014.

I received a call from the office of the Mayor of Honolulu this morning. The Mayor will proclaim Ostomy Awareness Day in Hawaii, Saturday, 4 October, 2014. However, they regret to report due to his busy schedule a ceremony is not feasible!

Last week the Governor's office informed me he will sign a proclamation for this campaign. His schedule is also unable to support a ceremony!

It is my understanding this is the first time Hawaii has proclaimed Ostomy Awareness Day. Proclamation Document in PDF Format