The FAP Gene Support Group

(Familial Adenomatous Polyposis)

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The FAP Gene Support Group
Founded in 2003

Updated April 21st 2020

Latest Update on Peter's Personal Trial with Curcumin PDF File

A Light Hearted BBC Radio Leicester Interview with Mick.

Includes 'The Day they Sacked The Church Choir' Play Here

Latest Article Links from Daniel in The USA Daniels Page

As a lasting tribute to our late Chairman John Roberts (1941-2018) we have been permitted to include the final draft of our Verona Article. This was entitled 'The Role of a Patient Association' and published in the Springer Publication 'Intestinal Polyps and Polyposis' 2008
“The final publication is available at”.
Download PDF

December 2019 Facebook Page - The FAP Gene Support Group

now has 836 members

Latest News updated October 26th 2018

Our Founder Mick Mason received a "Champion of Hope Award" at

Genetic Disorders UK Symposium in London March 9th 2018

FAP is an inherited condition which mainly affects the large intestine (also known as the large bowel or colon and rectum). People with FAP develop many polyps (which are like small cherries on stalks) inside their large bowel. There are many different types of polyps but these particular polyps are called adenomas (the "adenomatous" in FAP). An adenoma can in time turn into a cancer which is why it is so important to make sure anyone at risk of inheriting FAP is examined.

FAP is a serious condition unless detected early when it can be treated.

This site does not offer any medical advice. For this you should contact your consultant or GP. Also no details of contacts or E:mail addresses will be made available to any third party.

The FAP Gene Support Group is run totally by volunteers.